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Cure RTD Foundation

Riboflavin Transporter Deficiency (RTD), formally known as Brown-Vialetto-Van-Laere Syndrome (BVVL), is a life threatening, neurodegenerative genetic disorder with onset occurring most often in early childhood. RTD affects motor and sensory nerve cells (neurons), taking away a child's ability to hear, see, move, walk, eat and breathe. However, RTD does not affect the ability to think, learn, and build relationships with others. The Cure RTD Foundation is the only global volunteer organization dedicated to saving lives through education, advances in treatment, and finding a cure for RTD. The foundation was launched in 2017 by families affected by RTD who made the unanimous decision to work together towards a common goal of a cure for RTD. We are a self-funded organization and 100% of every dollar donated to the Cure RTD Foundation through this CFT website goes to critical RTD research. - We pursue the most innovative research and make sure that it receives proper funding. - We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. - We provide relentless support to families, caregivers, and healthcare providers. We are truly in a race against time for the lives of those living with RTD. The more we raise, the faster the research progresses, the more lives we save. Your gift will bring us another step closer to the reality of healthy lives for someone with RTD.
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