Kinslow Tubb4 A Foundation Inc

A nonprofit organization

2% complete

$5,000 Goal

The Kinslow TUBB4A Foundation is dedicated to improving the lives of individuals and families affected by TUBB4A-related leukodystrophy, a rare and challenging neurological disorder. Our mission is to support groundbreaking research, provide vital resources, and foster a community of hope and resilience. We strive to enhance understanding of this condition, accelerate the development of effective treatments, and offer compassionate care to those impacted. Through fundraising initiatives, educational programs, and advocacy efforts, the Kinslow TUBB4A Foundation aims to create a brighter future for patients and their loved ones. We are committed to empowering families with knowledge, connecting them with medical experts, and advocating for increased awareness and research funding. Together, we are making strides toward a world where TUBB4A-related leukodystrophy is better understood, better treated, and ultimately, cured. Join us in our journey to bring hope, support, and a voice to those battling this rare disease. Your contribution can make a significant difference in the lives of many, helping to turn dreams of a cure into a reality.

Mission

Our mission is to provide information on accessible and equitable treatment options for every child affected by TUBB4A-related leukodystrophy, regardless of their geographical location or socioeconomic status. We are committed to relentlessly pursuing research, collaboration, and advocacy to ensure that no child's journey is defined by limitations, but rather by possibilities for a healthier and brighter future.

Needs

The Kinslow TUBB4A Foundation is dedicated to improving the lives of children affected by TUBB4A-related leukodystrophy. We strive to support innovative research and provide educational resources to advance understanding and treatment of this rare genetic disorder.

Our fundraising needs include:

Advancing Gene Editing Research:

Goal: Fund cutting-edge research to develop gene editing techniques that target the root causes of TUBB4A-related leukodystrophy.

Impact: Your donation can help us move closer to a cure, offering hope to affected families and potentially transforming the landscape of genetic disease treatment.

Drug Repurposing Efforts:

Goal: Accelerate the discovery of existing drugs that can be repurposed to treat symptoms or slow disease progression.

Impact: By supporting this initiative, you enable faster and more cost-effective solutions to improve the quality of life for those affected.

Educational Outreach:

Goal: Provide valuable resources and information to families, healthcare providers, and the community to increase awareness and understanding of TUBB4A-related leukodystrophy.

Impact: Education empowers families to navigate the challenges of the disease and helps build a supportive network.

Your generosity can drive real change. By contributing to the Kinslow TUBB4A Foundation, you become part of a community dedicated to transforming lives and fostering hope. Every dollar counts in our mission to find effective treatments and provide vital support to those in need.

Equity Statement

At the Kinslow TUBB4A Foundation, we believe in fostering an inclusive and equitable environment where every individual affected by TUBB4A-related leukodystrophy receives the support and opportunities they need to thrive. Our commitment to equity is rooted in the understanding that diverse perspectives and experiences enhance our mission and drive innovation.

Organization Data

Summary

Organization name

Kinslow Tubb4 A Foundation Inc

Tax id (EIN)

93-3906920

Guidestar

Causes

Intellectual, Developmental, and Physical Differences

Operating Budget

Less than $100,000

Counties Served

Denton, Tarrant

Address

1429 WESTBOROUGH LN
ARGYLE, TX 76226